AML

Hi  and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear about your mom.

A blood cancer diagnosis can bring a lot of stress on a family but talking with people who are on the same journey will help a lot. I have lived for 20 years with a different type of blood cancer but do understand the challenges.

What types of treatments (if any) are her team proposing?

Don't focus on the 6 months as from my experience on my own cancer journey and supporting folks with blood cancer - this is a pure shot in the dark. The most important thing you and the family can do is support your mom and enjoy each day as if it was a year.

You will get support on this forum but you may also find our Carers Forum, Friends and Family Forum and Supporting someone with incurable cancer forums a good place to connect with folks in the same position.

Have a look through our various Macmillan Support Line Services then call them on 0808 808 00 00 to be very helpful covering Emotional Support and Practical Information. Clinical Information and Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

We also have our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

Talking to people face to face can help a lot so check to see if you have a Maggie’s Centre in your areas as these folks are amazing.

It is worth putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.

To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - REMEMBER hit the big green SAVE before you leave the page. If you're not sure what to write you can take a look at any members profiles by clicking on their username.

Always around to help out or just to listen.

Livingstick 

im so so sorry for your family.  AML is such a horrible beast.   Have they suggested why your mum may only have 6 months?  Is it because of her age and / or the sort of chemo they can use?   

I do want to try give you some hope (but don’t want to give you false hope of course) and say that my husb was given hours (yup “hours” not days or weeks) and by the grace of God and an amazing NHS he is here in remission 2 and half years on.  I know not everyone is so blessed but I do want to say that predictions of the docs are not always correct.  

I feel for tou you so much though.  Aml is so aggressive and unpredictable 

Hey jaymacabc123,

how is your husband doing? I have read your posts before and i have noticed he has been in remission without transplant:)

hope all is great!

Hi sorry for such a slow reply.   I’m very seldom on this site now (tho in the early days it was literally a God send as helped keep my sanity!)

i made a conscious decision to not log in too often as found that even tho he is in remission AML was still taking too much of our life away...by me constantly checking this (and other sites and worrying worrying worrying!!)

anyway in answer to your question he is still in remission and has biopsies to check for MRD every 3 / 4 months (he’s due to have another next week... so now the “what if” worries start again.... get that worry every single biopsy!!

He had 4 cycles of chemo.

FLA.  1st induction (didn’t get into remission)

FLA-IDA 2nd induction (remission)

HIDAC  x 2 rounds for consolidation.

he was diagnosed jan 2017 and treatment finished October 2017. 

he looks and feels fab so