How often do you have bloods tested ?

So yup in short I wanna know how often you have bloods and how often you have biopsy?

Hi Jay

I have mine around ever 4 months, no biopsys.  I had chemo & not transplant as well.

BW

Anna

Hi Anna - 

i remember you well from when I used to be on this sitedaiky ! Are u still a bloodwise ambassador? 

How long after treatment ENDED did you go into bloods test every 4 month?  For how many years after treatment ENDED did you have biopsies and for how long pls?

thAnk you

i think I wld not panic as much If there had not been a c*ck op with them losing the April biopsy!  He was having biopsies every 2 or sometimes 3 months.  Now it will be 5 months and I’m so worried 

Hi there

Yes I am still an Ambassador, really busy as usual with lots of positive stuff  so don't have as much time as I'd like to keep up with this forum

I've been in remission about 4 years now, my appointments went to every 4 months after about two year as after this time the likelihood of relapse drops.  Because I wasn't on a trial I've never had biopsies since I was having treatment. They only do it if you are on a trial.

Has he ever had any issues with the results of his bloods or biopsies?

BW

Ty for reply.  I had no idea only trial patients had biopsies?  Is that true of all AML patients in UK?  I really did think EVERY aml patient had biopsies - maybe not as often as a trial patient but I thought they had at least every 6 months!

 I wonder if it's funding?  But whatever the reason it's. not good!

My husband ISN'T on a trial but has regular biopsies and I'm so glad he does.  I think it's because he had a lot of complications and then his markers returned (in a biopsy not bloods) but subsequently disappeared ,,, so they said biopsy every 2 months, (aspirate - for the molecular - doesn't have the trephine that often).  Then it went to 3 months but a muck up at lab means they lost his results and it took 4 weeks to realise so now this biopsy will be 5 months!

How often did you have bloods towards the end of the first 2 years please?  He was having once a month, then they reduced to every 2 or 3 months.

Oh I just heard (today) that there’s specialised booodcrwsts that show mrd now.... so it’s vonsultants choice ofbits biopsy or bloods.  Interesting!  I’m sure my husb wld far rather have bloods than biopsy

Hi

I see, yes things are really advancing in AML now, there is tons of research going on and I can see lots of difference since I was treated in 2015.  

Good to know he no longer needs biopsy, he should get the results from his bloods at the appointment so no more waiting, I always get mine at the same time.

Best regards

Anna