Hello all, I hope everyone is having a good day. I have noticed every time I have oxygen therapy either via mask or nasal cannula afterwards I get a really tickly and irritable mouth and throat. This causes me to cough a lot. Has anyone had this and...
Good morning all, my first post here and a bit of a long one. My mum was diagnosed with AML in September 2025 and has been a strong fighter going through 2 rounds of Vyxeos, getting remission after the first round but unfortunately spiked back up after...
I have been having chemo for AML and in 3 weeks time will have a bone marrow transplant at Kings College Hospital in London. I signed my content forms yesterday, and am beyond terrified of how ill the chemo and procedure will make me. My journey so far...
My Dad is in his 80s and two years ago was diagnosed with AML with a prognosis of 2 years He had a bit of acazatine treatment before being stopped due to risk of stroke. It is now past 2 years, he is fighter but now has an itchy rash due to the leukemia...
Hello everyone. I’m new here with a diagnosis of therapy related AML. The outlook isn’t good for me and I’m devastated, it’s incurable and my life expectancy is short. Just looking to chat with you, see how you are and how you deal with all of this on...
Hi there. I had the most devastating news yesterday that the NHS are unable to commission a 2nd stem cell transplant for me as I relapsed 9 months after the first one. This is despite being well and fit and gaining remission via Gilteritinib. I am at...
Hi, I’m new here and I guess just wanting to speak to people who understand all this. My dad was diagnosed with CLL, via a routine blood test, in 2014 when he was in his early 60s. He was fit and active and put on Watch and Wait. Then he stopped...
Hi all, Finished treatment just before Christmas, had Covid, then got the all-clear from AML on 16th Jan. Problem now is I am incredibly weak and I tire so very quickly. It is unbelievably frustrating. I have an appointment with a physiotherapist...
Hi, We've heard some heart breaking news today that we getting nearer to the decision to have to move to palliative care for my Dad, aged 82. Please could someone tell me more about what this is likely to mean for next steps. Will he get a choice in...
Hello Everyone, I am here in Michigan, United States and my girlfriend’s dad was recently diagnosed with Acute Myeloid Leukemia. Her dad is 64 years old and is considered to be healthy otherwise, so he was able to be on an aggressive form of 7 3 chemo...
