after treatment of ALL

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Diagnosed by All it all started 5 months ago and under treatment from 5 months

and just curious  what habit should i drop to be more cautious like alcohol   an if anyone knows why Reason of the disease 

  • HI  and welcome to this corner of the Community although I am always sorry to hear about your diagnosis. I am Mike and I help out around our various Blood Cancer groups.

    I don’t have Acute Lymphoblastic Leukaemia (ALL) but I was diagnosed way back in 1999 at 43 with a very rare, incurable but treatable type of CTCL - NHL Low-grade non-Hodgkin lymphoma ……. eventually reaching Stage 4a in late 2013 when a second, also rare type of aggressive PTCL - NOS NHL was then presenting so although my blood cancer ‘type’ is different I do appreciate the challenges of this journey rather well.

    Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘ALL Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.

    As for what to eat or not to eat or drink…….. my dietitian said just follow a good balanced diet……

    How and why we develop our blood cancers is one of the great unknowns…… but living a healthy lifestyle can only be a positive move going forward…. my Heamatologist said I was just one of the unlucky people to develop my condition.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support or just a listening ear.

    For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

    You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups… the one I attend does have a person with ALL in it so worth checking.

    Always around to help more or just to chat

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • thank you for informing Innocent