Mum has terminal lung cancer and concurrent bladder cancer

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Where to start? It should be easier to put into words what we feel….but somehow it’s not. 

my mum had been unwell for a couple of years…no energy. When she came to stay with me ( I live 1.5hrs away from her) she spent most of the time in bed. Early last year, if not before, her voice reduced to a whisper occasionally. As this was similar to how my husbands lungs cancer initially showed itself, I told mum to go to the drs to get it checked. She didn’t. Despite the nudges every so often.

Christmas 2025…..my son noticed blood in toilet. Could only have come from my mum as just me, my son and mum in the bungalow. My husband having got the all clear from is lung cancer 2 weeks to the day before he died suddenly from heart failure. As mum had had bladder cancer before I suspected it had returned. Christmas Day, mums cough (she has COPD) changed to a not pleasant sounding hollow cough. (Just for clarification I was a nurse for 30 yrs + experience, specialising in A & E but with several years ward experience).

We ended up in hospital New Years Eve with low BP but they referred her to Urology, ignoring my concerns re her cough and low BP. We got home at 0630 New Years Day. When mum got up later she voice had disappeared down to a whisper. It’s never come back. Urology were excellent, seen within days and diagnosed with bladder Ca. They sent her for a CT chest (thank you!).

Result….stage 4 lung cancer. 2 different cancers not metastasises from bladder or vice versa. Cannot fault the hospital and the speed of everything from start to end diagnosis. Mum didn’t want chemo or any treatment. I respect her choice.

My brother and I went to all her consultations and found out that she has been a smoker since she was 15. We are both non smokers….obviously put off by being surrounded by it!!! lol Her choice and there’s nothing to be gained from being hung up on that info really so we’ve had to try to let it go.

Mum was 83 in may. She is losing weight, in bed most of the time, has a lump on her neck which is growing daily (now waiting for it to gradually leak),  pain is increasing, not eating, not drinking much, loses her rag when we try to get her to at least have a drink or an Ensure drink….good job she can’t shout at us anymore! We have to see the humour in all of this or it would overwhelm us!

My brother is her main carer as he lives with her. I go over every week and when I’m needed in between. Why I’m writing this?….im not really sure but it’s a release I think. I’ve just got back from mums and can see her deterioration weekly.  They have support from local hospice and community team and I go to local support group once a month.

Not liking this deterioration…it’s my mum. How do I process that I’m going to lose her relatively soon? I have 2 adult children who are close to their nan. My brother has lived with her since at least 1986. Jeez. I can’t comprehend life without my mum. I will be ok but it’s hard to imagine it.

  • Hello  

    I am Brian one of the Community Champions here on the online Community.

    I have just noticed your post has gone unanswered. By me replying it will be "bumped up" to the top of the group and I hope seen, read and answered by other members of this group.

    I understand just why you have written your post - it's a release of your thoughts and it's a good as any place to vent here rather than with family and friends.

    Supporting someone close with end of life care isn't easy and remember our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for you and your brother - please do call - they can help.

    I wish you and your brother all the best with mum's care.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Sadly my mum died last Monday. The deterioration was quite rapid towards the end. I know I didn’t have much chance to come on here very often but knowing that you were all here was a big help. I’m still processing life without mum. The one thing that mum always wanted to do, for as long as I can remember, was to donate her body to medical science. All the forms were completed in 2019 and the life sciences department at the hospital contacted. On the day she died we tried to contact the Anatomy Office. Closed and not accepting any donations! We tried several times. Even the funeralcare person tried when we were there on Wednesday. Email was answered with the same message as on the telephone. Eventually I googled why….the hospital trust is being investigated for misconduct in the running of a mortuary service! In a way I’m relived that mum didn’t die earlier and had gone to the Trust as she would’ve been involved in the investigation but in another I’m so sorry and pretty annoyed (being polite!) that she couldn’t have her long time wish to donate her body. Thank you to all for your support and to the volunteers for everything that you do xx

  • Hello  

    Thank you for taking the time to return to us with an update, however I am so sorry to read the contents of your post. Please accept my sincere condolences, I am so sorry for your loss.

    I see you have joined the bereaved family and friends group. Don't forget our Support Line is there for you on 0808 808 00 00 (8am to 8pm 7 days a week).

    If I can do anything else for you please do get back to me. 

    Kind regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.