Utter disappointment

Hi Rowan647338 

I am sorry you were made promises that were not kept. Can I ask if you have tried ringing the helplne to see what support you can be offereed - 0808 808 0000 - it is open 8am to 8pm 7 days a week. 

<<hugs>>

Steve

aww am so sorry to hear this. We found it really hard too. Everything was a battle. We didn't get the referral we wanted and I ended having a little break down and our gp came out to the house and did the referral. Even than it was battle. Her wishes were not to die in our living room, as she didn't want my children to remember that. It was a complete battle with our hospice - first the didn't have any room available in final days and said she could go a wait list (a wait list to die, I've never heard of something so ridiculous). Then she said she was too far gone to transport. After a meeting with many hospice staff and my uncle advocating for my family. Then they final moved her. Unfortunately its all the lack of support and lack of compassion, that i remember most.

Have you tried calling the hospice to have a meeting with them?

Hi Rowan647338,

It’s Megan here from Macmillan’s Online Community team. I firstly wanted to say how sorry I am to hear you and your husband did not receive the support you needed when you needed it most.

To look into your concerns please could you share more details with us by completing this feedback form here or by emailing community@macmillan.org.uk and we can share this information with our feedback team.

We are conscious you both may still be needing some support and our Support Advisors on the Macmillan Support Line are there to help. Please get in touch by calling 0808 808 00 00, send an email or use live webchat.

I do hope you will find some support from using our Online Community forums and get in touch with additional information so we can help.

Best wishes, 

Megan
Macmillan's Online Community team

I have not but thank you.