Hi
my wife has incurable LPL
It can be slowed down with treatment but the side affects affect her mobility and hearing also her grip.
I have reduced my work hours to care for her but can't give up full time as we would not survive financially. She has made a bucket list of things she wants to do and talks about me being ok when she's gone and I don't know how to respond without breaking down which would be no good for her.
She wants to buy a Camper to travel the UK I'm just having problems staying strong we have been together 35 years she is my Rock.
Ty for listening
Mark
Hi Mark, Its hard trying to stay strong and puts even more emotional pressure on you. She most likely realises you are being strong for her and although that is a fine and caring thing to do, I do think you also have to know when to be honest about how you are feeling. She might be worried about how you will cope when she is gone, is she looking for reassurance from you that you will be ok? she might not want to mention it as she doesnt want to upset you. This is how things can get misunderstood in my opinion, and its far better to be open and honest (both of you) about how you are feeling. I tried to be strong for my partner, one day it got too much and I broke down crying telling her I couldnt live without her, how was I going to cope, couldnt bear the thought of life without her etc etc and you know what? It actually did us both good. We were both so busy being strong for the other one, we almost forgot to be honest about our own feelings. When time is limited, you have to be honest about how you are both feeling, keeping it bottled up isnt going to do anyone any good. When you are faced with losing your partner and best friend, its terrifying. Sending you hugs xx
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