Good morning Sagittarius2012. I too am looking for the same guidance. I have put off scouting on here as overwhelming amount of info and not sure what there is for carers.
Have you been designated a mcmillan nurse? Depending on your area of residence, there should be support groups but it can be a minefield to navigate your way around what you need when dealing with being a carer and all the info you're taking on.
I just wish I could have a cuppa with someone in the same boat as me. My mum has mesothelioma in lungs and stomach. I have friends but feel I drone on so I feel like I live two lives! My mum lives round the corner and I see her deteriorating daily. Sorry I am not helping you. Our local hospice stopped meetups.
sorry too hear about your mum I know how hou are feeling my husband lung, liver, stomach cancer he is having chemotherapy too give him a bit more time I am here if you want too chat just leave me a message and il get back too you take care
That's very kind of you. Made me think about yourself and your husband. I feel deeply sad and sorry. How do you find support if you don't mind me,asking. My mum is 83, my friend, my everything. I've joined some local craft and book clubs, as I can't work at the moment, for socialisation.
You may be able to ask your GP about local support groups that you could join. They will know of any in your area. There may be other resources such as hospice, marie curie or maggies in your area who may also offer out-patient support too (although I just read that your local hospice stopped meet ups).
I would continue to 'drone on' to your friends - they're here for you when you need them most, and that time is now. You can thank them later in plenty of time!
I have a booklet from Marie Curie here called 'Being Cared For At Home' which I have found very useful. you can view it online here:
So sorry about your mum. Its a very lonely journey we are on, I am just thankful for on line support but I know what you mean about having a cuppa with someone. Just sending you a hug x
I read a lot, it is my "happy place" if there is such a place at times like this. It doesnt take away the pain but it does give you a little escape if only for a while. Have you been on youtube? There are some amazing channels on there, lots of videos on how to cope at times like this and little things you can do to help make a difference to your daily routine and help you cope.
Hi julie Ann I was thinking of you just now and wanted to send you my best wishes. I do not wish to intrude by asking personal questions but you were very kind to me. I have my local hospice helping and a book club I joined at my local library. My poor has been extremely poorly and at a guess we have months as I refuse to think weeks. Here for you x
