My dad is end of life (I think) is this normal?

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My dad is stage 4 bladder cancer, he had to have a double nafrostomy, it’s in operable, chemo didn’t work, he’s too poorly for radiotherapy, he did try immunotherapy for a bit but has decided nothing is helping and he feels worse and doesn’t want anymore so all treatment has stopped.  He’s lost all his weight, he doesn’t eat or drink really as he always feels sick.  He has tried the anti sickness meds.  He doesn’t look like himself,  Now his eyes are bulging, he’s lost the use of his eyelids so one is permanently shut and the other struggles to stay open, his voice has changed and now sounds raspy, he still feels sick.  Is all the normal, if there is such a thing? It’s really sad to watch, we’ve not been given any idea on how long he has.  He’s too poorly to travel to the hospital really. 

  • Hi NIkkiS

    so sorry to hear about what your dad is going through.

    My personal experience lies in supporting my husband with his Stage 4 brain tumour journey so I can't fairly comment on what your dad is experiencing.

    I'd suggest you call his medical team or family GP and explain your concerns. You could also call the MacMIllan Helpline and ask to speak to a nurse. The number is below.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • I’m so sorry to hear about your father.

    do you have everything you need at home.

    I found a combination of the GP getting district nurses and the local hospice to help was the best thing in the final weeks.

    they came every day. We had a bedroom downstairs and intimate care and washing each day. Sadly this final days only lasted about ten days but we sat with dad constantly and I have never regretted being there every minute possible.

    I send you hugs for the days shead

  • I'm sitting here with my Dad in hospital during his end of life care. Your situation sounds similar to his - not eating etc. He was diagnosed about 8 weeks ago, we had no idea it would be so soon. 

    It's been a while since you posted so hope things have gob as well as could be expected. It's a lovely old place isn't it? Take care x

  • I am so sorry to hear you are going through the same.  I wasn’t really prepared for what cancer does to a persons body.  He found it hard to move his mouth toward the end so communication was quite difficult. I wish I’d been prepared for this and we would have got notepads and pens ready.  Although the was so exhausted it would have been hard to write, but I could see his frustration in not being heard.  

    sending you all my love, strength and hugs xxx