Hi just wanted to share my journey with my mum . My incredible brave strong mum was diagnosed 4yrs ago with uterine cancer. We r a very close small family just my mum, sister and our extended family’s. Fast forward from 2 rounds of chemo, radiotherapy & hormone therapy and the most positive brave woman is at the end of her life. House bound , (as she hasn’t the energy to even sit in a wheelchair) drugs for pain, sickness, no appetite. Incredible weight loss . Up until today she’s been actually crawling up the stairs and across the landing on all fours to get to bed until last night when I had to physically pick her up and carry her into bed . She’s given in and having the bed downstairs which is the most painful decision as she nursed her mum with cancer and in the bed downstairs in the same house. I cannot imagine how she’s feeling and that’s breaking my heart. I don’t know what to say to her . From the very beginning we’ve not cried in front of each other and have been so positive and just got on with it . When she’s lying down she’s chatty and bright but getting sick & weak walking when she’s up for the toilet. My sister and I take turns so she’s got 24hr care and I really don’t know how I would cope without her emotionally as well as physically district nurses once a week and our McMillan nurse Hannah who is just amazing . I have been obsessing with ‘ how long have we got ‘ when no one can give u the answer. And does it really matter ? Make everyday count ! As I think about it now I realise how lucky I was to have those precious 4yrs . Luckier than most cause I didn’t take her for granted and how precious every single day was with her. I guess in these situations u grieve even before you loose your loved one and now is not the time . There will be time for that later. So for you in these awful situations I feel u . Reading all your journeys have helped me so I hope this helps someone too. Big cwtches xx
Hi Louise,
I feel the same , my Dad has gone from being told no more treatment after 2 years of fighting ( chemo hormones and radiotherapy) along with the umpteen blood transfusion, he can’t take any more as of today .
he was still having transfusions but he’s too weak now to go for them , plus I think they are not working , he’s also been in agony going up and down the stairs to avoid being taken into hospital, but we have just the one bathroom upstairs so now he’s stuck up there.
in 2 weeks he’s basically so weak not walking again and one small meal , we’ve finally got his buy in to allow the hospice to bring a bed and they are arranging this , can you get this too so she doesn’t have to come downstairs?
big hugs we are going through the same , every day is the unknown but like you say you have to keep moving forward xxx
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