Hi everyone,
My husband was diagnosed with stage II Bowel cancer last February and since then has received more and more bad news. In June the chemo-radiotherapy had made a bit of an impact and was going well, in August we were back at square 1 and cancer was growing and had metastasised to his lungs, by December it was agressive and then in January we were told it wasn’t working and life was measured in months. He was due to start chemo (Irinatecan) to extend life where possible and so we got married early (should have been in August this year but we couldn’t guarantee his health). He is now stage IV and has been told life is now measured in weeks but I won’t know what that means!
G has stopped all treatment and has recently had a colostomy op to help give him some quality of life. I am still working full time and am his sole carer and want to the person to meet his every need but I don’t know how to be everything he needs.
How do I know when to give up work to care for him? He gets so lonely when I’m working despite me now working from home all the time now. I want to be here for him 24/7 but also don’t want to do it too early and end up losing my job! I find is so crude that I have to make this decision like this!
Has anyone got any experience or advice?
Dear Mrs Nic,
I am in the same situation. I also work from home. I set up my office in the room my husband is in but no one would ever know. He snoozes when I’m in meetings but can hear my voice. If he suddenly needs me I have been very straight with my colleagues and just say. I’m sorry but I have a ‘ situation’ to deal with.
he doesn’t get lonely and I’m here with him constantly.
I have realised this weekend that I may have to take some time off soon.
my manager has been very nasty to me and thinks I’m being dramatic as qoute ‘ I’ve never heard of someone not being offered treatment and I’d like a doctors letter. ‘ I’m not giving her one as my OH deserves his privacy. After this is all over I’m going to tell her exactly what I think of her.
so for you I don’t have much helpful to say except I hope you get some kindness and understanding from your employers. If there is an HR department contact them for advice. They are aware of employment law and I’m sure any employers would not want to be seen to be cruel and sack someone with caring responsibilities for someone who is ill.
it sounds like you’re full of love and compassion and your husband is very lucky to have you.
M
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