Hospice and weeks to live

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Hi everyone, I’m new to the forum. My 66 year old Mum was diagnosed with incurable lung cancer 6 weeks ago. She has been bed bound ever since this, following a terrible hospital visit for dehydration when she suffered a fall after the nurse didn’t support her properly into the toilet, despite my Mum telling her she was feeling very dizzy. She was in pain, completely bruised (on an already cracked rib) and absolutely terrified. Sadly, in the last few days she can’t support her own body any longer and doesn’t want to eat at all. It’s so incredibly sad and heart breaking to see her deteriorating so quickly. She is going into a hospice tomorrow (Christmas Eve) and because of Covid/having to wait for a negative PCR test, we won’t be able to visit until Boxing Day. Her partner of 36 years has done a fantastic job of caring for her 24/7 in the last 6 weeks, he’s been truly incredible. We asked the difficult question today and found out that she has only weeks left to live. Nothing can prepare you for the wave of grief that floods over you. Cancer is cruel. Sending love and thoughts to everyone and anyone going through similar.

  • I’ve been there Embirdwatcher and I’m so glad your mum and her partner have the support of The hospice now.He will be exhausted but it’s hard for all of you even to begin to let her go. Take Christmas Day to rest and ask to zoom call your mum. That should be easy to arrange. 
    mall the best with and I’m sending much love and prayers xx

  • you. Cancer is cruel. Sending love and thoughts to everyone
  • My husband has terminal lung cancer with mets in his spine and pelvis, he was diagnosed in July last year, he had radiotherapy to the spine and pelvis which didn’t work. Chemo reduced the tumours but he couldn’t have anymore due to confusion and hallucinations. He has been on Dexamethasone which he has now stopped and since then he has no appetite and sleeps a lot, is dizzy and confused. The palliative nurse is changing his medication but nothing seems to be working, he has been in the hospice twice and in hospital. He had sepsis which I didn’t get to know about till I read his discharge summery, I just feel as though we are losing the battle. 

  • Thank you and the same to you lovely xx

  • I’m so sorry to hear your sadness and that the battle goes on with difficulty. My hubby is stage 4 bone and lung mets from undiagnosed prostate cancer but he is doing well on hormone therapy for now.

    I was in your position with my dad last year at this time and my heart goes out to you.. I dread going through it again. 

    much love to you xx

  • I’m so very sorry to hear this Snowny place, it’s absolutely heartbreaking. I hope the team are able to find the right treatment/medication to make your husband as comfortable as possible. I hope you have strong family and friends supporting you through all this. Sending love and strength to you x

  • Hi Louli, thanks for your reply from the other day. We were able to visit yesterday and my older sister managed to finally cry properly for the first time - she had been holding it in and has now had that release of emotion. I feel as though I just want to be with Mum all the time. We aren’t allowed to visit until 2pm, but will make make the most of it when we ARE allowed to visit. Sigh. I hope you are coping ok? I’ve never experienced this level of sadness and pure grief before, it’s pretty overwhelming and all consuming. Sending love and strength to you x

  • Hello lovely,

    yes I had never lost anyone in my life before this year… dad was hard but my best friend helped me through it. She stayed with me and dad for the last few days to help. It was lockdown last Christmas and just us, a syringe driver and the support of a palliative care nurse and some lovely district nurses. It was very peaceful once on the driver. He was only in his bed for two days. We played his favourite Johnny Mathis in the background, made him very cosy and talked to him about happy times while he slept. Like your sister this is when my tears came. 
    Mum didn’t see dad at all as she was in the care home and because of severe lockdown restrictions after 62yrs of marriage she didn’t get to say goodbye. That was brutal for her.
    It’s a heartbreaking time and a very long goodbye in the last days but I felt relief too in the end because it was a huge responsibility to provide that level if care at home.

    Sending you big hugs xxx

    louli

    xxx