Progression of brain cancer

  • 2 replies
  • 12 subscribers
  • 798 views

Hi Everyone

My mother was diagnosed with terminal brain cancer 2 months. I have seen her CT scan and she has multiple lesions (15+) throughout her brain which range from quite small to golf ball size. Over the last 2 months her mobility has reduced drastically, she has aged rapidly, has suffered from quite a few falls, her short term memory has definitely been affected and she has started to become confused (but not all the time thankfully). I live 170 miles away from her and so have effectively moved back into her house and despite good support from my family back home, I do feel a little isolated as well as grappling my mother’s rapidly developing illness. My sister was also diagnosed with a terminal cancer 3 days after my mother, so we also have this to be dealt with at the same time. All in all, it’s been a challenging couple of months and the challenges will just grow as we go forward.

I have a simple sounding question although I suspect that there is not a simple answer - how will things go from here? I’ve read a lot of stuff on the internet but it’s either v medical, generalised or emotive, so nit all that helpful in helping me judge what the coming growing storm will bring and when. She’s been given a 3-6 month prognosis and we are 2 months into this. She does not want to know the prognosis and neither does my sister or her family - I find being the only person who know this quite hard to deal with sometimes especially when my mother talks about future events that clearly are ever going to happen even if she manages to struggle beyond the 3-6 month prognosis. Things can feel pretty bleak at times, although thankfully she is still good company most of the time and is dealing with all this with remarkable resilience, although I can see the resilience has weakened recently. 

Thoughts on how to deal with and judge what the near future will bring, gratefully received.

  • Hello 

    Sorry I haven’t got in touch sooner, I’ve recently celebrated my dads first heavenly birthday so I haven’t been as active on here as I’d like. But the reason I mention that is because you ask “how will things go from here”,.

    The honest answer is tough, it won’t get easier, however you do have time to make memories. We lost my beautiful Dad in April of this year, he left us far sooner than we expected and of course decades sooner than we would have liked. I, like  you wanted all the answers, but my dad just wanted to spend every last minute he had to the fullest, so we did our very best to make that happen. He was set on going to New York, which I knew (being the practical organiser of us siblings) would never happen given his health, but we still talked about it, and we spent so much time together, we laughed we talked and we did our best to enjoy every moment. Don’t get me wrong it was hard and I cried a lot personally and sought comfort in these groups. But I guess what I’m saying is try to take time together now, and lean on us when you need to. 

    If you want or need to talk more about what’s to come reach out, please. But right now I wish you and your family every bit of strength and love. 

    Here whatever, 

    Juicestool (aka Lucie) 

    xxx

  • Thanks for your reply Lucie. Yes you are absolutely right that times will be tough and also need to make the most of the better days now and to come. It’s good to spend so much time with my mother, although it’s a bit weird being back in my old bedroom in the house I grew up In. Trying to make the most of what ever time we have left before the cancer starts taking her mind and life. 

    Rob