My dad was given 6-12 months in feb with lung cancer and I a week, he’s gone from making his way upstairs and taking home self to bed. To now I a hospital bed down stair, incontinent, not eating and barley drinking.
it’s happens so fast I’m struggling with it I’ve gone from full time working to full time caring
changing his bum
changing his conveen
Washing him
trying get drink down him and his meds
we have district nurses daily visits and Marie curie night sits . He’s been sitting in his chair all week for parts of day as that what he loves, but today has not moved from bed.
just wondering how long I’ve got and I have to keep leaving the room as it’s so upsetting and don’t want him to se me upset.
inlook at him when his arms are flailing and think just go in your sleep and then feel guilty cause he has lucid moments and makes me laugh and I think no stay.
it’s such a cruel illness long and bowl 2 primary’s
Hi @sam_t,
Sorry to read about your dad and the impact his illness has on you both. I can definitely relate to the feelings of guilt with my father though in his case it was not cancer but we lost his bit by bit to a series of seizures. I also recognize the bits about lucid moments, the last day I spent with my father in the supervised flat my parents then lived in was mostly spent watching only fools and horses, something he really enjoyed and a very powerful memory for me.
What we often talk about on here is pre-grief, that sense of loss of the future we expected that can cut in at almost any time. Even a expert oncologist will struggle with how long an individual will live though - they can take a guess based on averages but then nobody is average, no two cancers identical.
I don't know how much of that helps really, but did want you to know you are not alone.
<<hugs>>
Steve
Hi Steve
thanks for your response and words everything gone so fast he, is now unresponsive has been for 2 days. I feel the guilt now as I’m sat with him wishing him away. Saying let go, whilst at same time I’m devastated I’m losing him. Its gone through his body so fast he’s a skeleton, in 2 weeks but still battling on x
Hi Sam I am so sorry to hear of your experience. I am in a similar position with my dad at the moment, just days ago he was able to walk and he’s now suddenly in his hospital bed downstairs with less of an appetite and is a lot quieter. It’s so confusing in regards to how much time is left, the nurses told us they can’t predict it but they do think it’s a matter of weeks not days because dad still has a bit of an appetite. Just know that you’re not alone, and I am sending my best wishes to you to get through this unimaginable time which no person ever wishes to experience and I would never wish upon anybody. I hope you feel you have support around you to get through such a difficult time.
Hi dad passed away on 31/5 it was horrible but at the same time peaceful and how he wanted, just wish I had him back now; hope your ok x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007