A new member to the MacMillian community looking for advice, guidance and support

FormerMember
FormerMember
  • 2 replies
  • 11 subscribers
  • 1583 views

Hello, my Dad was diagnosed with kidney cancer at the beginning of the year and found out that it had spread to his spine, an archery in his leg, and also to his liver last month. He had bladder cancer a couple of years ago, but after treatment, he was thankfully given the all clear. This time round he has unfortunately been given a year at best. Even though different treatments had been discussed as an option when he was first diagnosed to try and give him the best quality of life for as long as possible, he currently isn’t receiving any form of treatment, but he was prescribed a course of steroids to build his strength (which he is no longer taking) morphine to help ease his pain (which he is still taking) and most recently a course of anti sickness medication. I don’t live close to my Dad, and even though my Mum lives with him, their relationship is strained at the best of times and she is physically unable to look after him if he starts requiring more care. I obviously want to try and be there to support my Dad as much as possible, but feel so helpless where I don’t want to put his health as well as the health of my vulnerable Mum at risk with the current pandemic.

  • Hi and a warm welcome to our Community, although I'm sorry to hear about your dad. I feel for you with all the trauma of the coronavirus stopping visiting loved ones. Has your dad been referred to the local hospice? Hospices in various areas have different approaches during the virus, but they usually provide a lot of help in the home. You could try contacting PALS at his local hospital; they could tell you what help is still available during lockdown. 

    Hugs,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember in reply to LoobyLou49

    Hello LoobyLou49 , apologies for my delayed reply. Thank you so much for taking the time to read as well as replying to my message, I really appreciate it. I don’t know if my Dad has been referred to a local hospice, I think that my Mum and Dad are now considering end of life care at home as the best option (due to it being  the option that has the lowest risk of them contracting Coronavirus) He has deteriorated so quickly over the last week (I forgot to mention that in my message) that when a paramedic had to be called out where Dad couldn’t stop being sick the other day, they said to my Mum that he may only now have a couple of weeks, so I don’t know if a hospice referral would still be an option, but like you mentioned, maybe the hospice could care for my Dad at home. Currently I think that his only care providers have been a combination of district nurses, and MacMillian nurses, but via the phone.

    Thank you so much for letting me know about PALS, as I hadn’t heard about the service that they provide,

                  Many Thanks again x