Shock Diagnosis

Hello Sapphire14. I am sorry to hear of your chaps troubles. Although you will get massive help from this forum you should be able to access your Macmillan nurse. They know all about what is happening to body and mind and will be able to answer all of your questions. Have a chat with the nurse on your own if you can so to avoid fussing around him, its not a betrayal to go behind his back. You will know how to help as well then.

Hopefully you will get useful pointers from wise heads on here. Best wishes.

When my mother's cancer returned and was inoperable, she didn't want care givers either. We ended up meeting with hospice privately without her, and then they stopped by our house and met with my mother. They emphasized that they could be there as little or as much as needed and wouldn't come unless she wanted them too. They also told her about all the services that they could provide when needed. That second meeting changed my mother's mind and when the time came, she relented and let hospice come and help her out. They were a godsend for our family and made that last month of my mother's life a lot more doable for us. 

Your post explains exactly what can be done by hospice support. Thank you so much for replying.

I am sure this will give a lot of succour to people in this terrible situation.

Thanks Norburry, we met the MacMillan nurse last week but unfortunately she’s now off sick

Thanks I am glad you found a solution that helped your mum.

As our MacMillan nurse not available the community team are getting involved, hopefully today, and as he sees them as nurses rather than carers (not sure he’s right!) I think that’s helping.