Making Tough Decisions

Hi Pheobebeebee, 

I'm so very sorry to hear what you are going through right now. My husband is currently at the end of his GBM journey. I don't really have much to say that is helpful but saw you'd not had a reply and at least wanted you to know you aren't alone. Not much to say right now but will be thinking of you. Xxxx

T

Hi, my husband is 2 1/2 years into his journey with this horrific disease. Tumour no 3 is proving to be stubborn and has doubled in size since January (in right temple) no sign of original tumour in frontal lobe, 2 surgery’s with the second a total resection but grew back within weeks. TMZ stopped, He has also recently stopped POV as it was not affective so is now one cycle into 3rd line chemo but had to stop due to platelets and liver malfunction. He has however improved health wise and seems better now the chemo is out of his system so we are in a dilemma  do we continue the treatment and see him sleep most of the time and have zero energy or do we stop and enjoy some quality time with family and friends? We also have my sons wedding in October which is the big goal. I guess my question is if we stop treatment will my husband make it to October??

so many of us on here going through such sad times with our loved ones xx

So sorry to hear this xx

When my dad was on chemo we knew when during the cycle he would be most tired. If your husband is recovering well he might just need bigger gaps between chemo, my advise would be slow and steady but keep going. Without surgery, only radio and chemo, my dad has had 5 years and 9 months since he was first diagnosed. He has been tired and there have been days where he just slept, but the tiredness never lasted and he always bounced back until 2 months ago. Do you know your husbands ECOG Performance Status? 

Last 2 months my dad has gone downhill so quickly, he is in a profile bed in the living room, can bearly move his legs, speech is slurred and struggling to move his right arm. Dr made decision for us this week and said no more chemo unless by miracle he starts walking again xxx

Thank you xxxx thinking of you xxxx