Hi everyone,
I'm Rachel, I'm 35 and I live in London. My Mum, who was previously really heathy and fit, was suddenly diagnosed with cancer of unknown primary in December. By Feb they figured out it was Primary Liver, which is weird because she has no risk factors for that, bad luck I guess. By the time she was put on Lenvatinib she was very poorly. She seemed to be doing well on it and have more energy and few side effects. Unfortunately it only worked for maybe a month, 6 weeks, and she was taken off it 2 months after she started it after there was evidence from multiple blood tests and another ct scan that it was no longer holding back the cancer. We were offered chemo (which doesn't generally work for hcc) but 3 days before she was due to begin it, she was hospitalised with an infection. 2 weeks later she still had the infection and also fluid buildup in her lungs and abdomen. She was given terminal status last Thurs and is coming home from the hospital and off all treatment tomorrow to die at home. I had a strong inkling she would be terminal when I realised they weren't able to operate but she wanted to be ignorant and hopeful so I didn't interfere with that. Even so, I thought she'd have more time and it's a big shock.
Rachel
