I've asked Caroline this, but wondered if anyone has experience.
Is there a standard threshold level of platelets/haemoglobin when they advise having a transfusion. I was told it was 20 for platelets, but I'm not sure if that is patient specific or depends on illness. I have relapsed AML. Two weeks ago I had HB of 93 and told no transfusion needed. A week later HB was 85, they said I needed one unit, non-urgent 3 days later. Last test Friday I was 93 again but nurse thought I would need transfusion on Monday.
That was the end of the question, the rest is just me grumbling.
The Friday haematology nurse couldn't confirm I need a transfusion as at 5pm the SCT team had all gone home for the weekend. Now I will have to ring early Monday, hope I can get an answer, though I know the SCT staff will be tied up with a regular clinic. Then get a taxi if they give me a time to go in.
Apart from that I've twice been given different appointment times on the same day. Getting very stressed by it all.
Tessa
Good morning Tessa, falling below 80 has always been the trigger for my HB for transfusions.
Had my full bloods done a few weeks back and are looking good just my Platelets are at 142, just under the 150-410 level but they are happy with this as it may never recover into the middle levels.
HB is at 146 well in the 130-170 range.
I do look for you to get all fixed up with a positive way forward on this Tessa ((hugs))
