Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
I’m new to this group but due to have my autologous stem cell transplant next week.
i have relapsed large B cell Lymphoma with a tiny patch of active disease remaining.
I just wondered if anyone had any advice to give about the whole process.
I am going to be admitted to Queen Elizabeth University hospital in Glasgow. I had a visit there yesterday, nice rooms and lovely staff. So I would be especially interested to hear from anyone who has been in QEUH.
Hi again Susan and a second welcome.
I had both my Allo SCTs across at The Beatson..... but it will be the same staff and they are great. I have only been to the QEUH for clinics - amazing place.
We have had a few folks go through SCT in the QE so lets look for them to pick up on your post.
We have two folks from Inverness getting ready to go down to QE, one for an Allo and other for an Auto so look out for them
BEAM can be a big hit but its not for long. I had a different conditioning but did have the M in BEAM and that is Melphalan.
Have a look at this thread about having Melphalan. During the M you will have to do the ice pole sucking thing. I asked to start 30 mins before, through the 30 mins IV and 30 mins after to stop your mouth turning into one big ulcer!!!!
You will most likely be given a two pack oral rinse called Caphosol. Very important to use this as you are told - I set my phone for every there. hours to ensure I was taking it correctly and this should help control any mucositis.
Also have a look at this thread Checklist for SCT Unit, from what I have been told, folks going through an Auto at QE may well be in a ward with other folks going through the same and only in a single ward if there is one available or catch an infection, but these are mainly kept for folks going through an Allo.
I am just going out but come back with any questions and I will try and help out.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
Due to one complication or another, I've spent most of my year in 4b at the QE and the staff are AMAZING. Lisa, the ward sister, is wonderful and will always make an effort to come and say hi and if anything at all is amiss ask to speak to her she will make it better. The health care support workers have excellent chat and honestly will keep you going, and one of my favourite things about the ward is they try to keep your nurses pretty consistent so you'll usually see the same face a few days or nights in a row. The consultants do two weekly cycles on the ward and sometimes it will be a registrar who comes in to see you so again, it's nice to have familiar faces. The physios are so lovely and give excellent advice, and the dietician is BRILLIANT, I've ended up having quite a lot of extra help from Claire and if you're ever struggling with eating she will get you through it.
You're going to an excellent team, take a deep breath and let them take care of you, and best of luck!
Hi Susan I had exactly the same relapse then auto. I got through it recovery is slow afterwards, but I’m now almost two years in remission and back to my normal self doing all the activities I did before. It’s been well worth going through it.
Hi, susan--d, I have been thinking of you and hope you're coping with all the nasties. I start next wednesday. Dreading it!
Wishing you well
Another day survived
Hi you will both be fine the nursing staff looked after me very well and nothing was too much trouble, make sure you take some ice pops to put in their freezer. These helped so much with my mouth.
Good luck and wishing you well Sue
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: