Hi, I have BDPCN - diagnosed in July.
Doctors have told me if I don’t get a stem cell transplant I’ll have about a year left, but they’ve also told me the likelihood of the cancer coming back even if the transplant is success is very high and I’d be lucky to have 5years cancer free.
I would like people’s honest thoughts and opinions on their stemcell journeys and how long it took them to get back to the life they had pre cancer. How long does it take to feel strong again, take the dog for a walk on your own, go away abroad on holiday again - the simple pleasures that I took for granted when I had them. I feel like life will never be the same in my abilities, do you agree with that or is there hope for a better future? What have your experiences on getting GVH been like or other complications along the way? I just want real transparency of what I could possibly have ahead of me, good or bad experiences. Doctors can’t be sure and I know it’s so individual to say but it’s good to hear people who have lived it themselves and the challenges they have along the way. Any advice, pointers, experiences, dos and don’ts are all greatly appreciated. Thanks
