So next week I’m booked in for a Hickman lumen line fitting on the Friday .Sunday is d-day stem cell transplant treatment begins, I’m blessed to have found 4 matches all who hit 11 out of 12 of the markers.
I have myelofibrosis with a rare gene in that guess at 57 I’m a lucky man to be ahead of the time bomb which was lying there waiting.
I’ve had no symptoms other than a enlarged spleen and it was all discovered from trying to donate a pint of blood and not being able to.
Scared to death but I know someone who is 20 odd years on from his and he’s still out and about
. God bless the soul who gives me this chance to continue being a new grandfather
Hi again Korkey ….. good that the plan is coming together, I went into my second Allo (donor) SCT a month before my 60th birthday, my 68th birthday was on Monday past and I am living a great life.
Yes my very rare type of Lymphoma is incurable but my team are confident that it has been put to sleep for a long time…… you can see my story in this (LINK)
Hi…… because I have a very rare (7 in a million) type of Lymphoma there was always going to be challenges during the various treatments to look for it to work……
I am pleased to say that most SCT journeys are straightforward and mostly uneventful 
