Maintenance treatment Stem Cell Transplant

Hi Sue Cakie very unfortunate to hear about the reaction you have had. I do t have Myeloma and no maintenance treatment and definitely not had this drug but I have life time allergies with any drug that is produced in animals….. unfortunately this does happen and a few of the drugs I had over my 2 Allo SCTs fell into this category….. and the main reaction would have been a very bad skin reaction so I had to have excessive amounts of antihistamines when having these drugs.

I hope you find a way forward ((hugs))

Thanks for the words of encouragement Mike .

This is just another drug to add to my list of drug  allergies  The antihistamines prescribed over the phone yesterday don't really help alot I'm afraid ..Have phone consult tomorrow I'm sure something will be sorted out to make comfortable me more comfortable.

Enjoy your evening. Best wishes Sue 

All my main antihistamines during and post SCT were full on, sleep for hours IVs - no tablets ((hugs))

Oh no.. this doesn't sound nice. I hope it get sorted out soon. In a few weeks I will be going onto Lenalthomide too. I think I'm a few weeks behind you treatment wise. Other than this I hope you are recovering well and finding time to go out some.

Hi Sunshine 1, how are you ? Hope this finds you feeling well and making progress  , thank you for your message   It has been a difficult week  Meds stopped now , meeting with my consultant on Friday to discuss alternative maintenance meds..I'm so grateful for the team at the hospital managing to to resolve things over the phone and scanning prescriptions to my local pharmacy   and getting bloods done at the surgery .Enjoy the rest of the Sumner Sunshine 1 x 

Sue x