Admission Day

Fifi Mac, Best wishes for a successful transplant and a speedy recovery. Please keep us updated

Joy xx

Hi Fifimac oh I know that feeling ever so well. 9 years ago today I had been home for 4 days after my 4 weeks in The Beatson (Glasgow) after my first Allo SCT.

It’s the same team I had and they are amazing and will take great care of you.

Have you been told the name of the conditioning treatment you are having to take down your immune system?…… I had The Stamford Regime for my first Allo (but this is normally only used for my type of Lymphoma)……. then I had FluMelAlem30 for my second Allo SCT.

You will most likely be given Caphosol mouth care to use. From  the very first day (In my case T-14 for my first Allo then T-7 for my second Allo) I set my phone for every 3 hours to make sure that I was doing this all day.

My head SCT consultant Mrs P said that the Caphosol was rather expensive but if I used it correctly it would save me a lot of mouth pain and having to be on other drugs to overcome any bad mucositis. I did well with only one very small area developing and it was not a problem.

All the very best and do remember we are here if you want to chat ((hugs))

Wishing you a smooth transplant journey Fifimac. I was in your position 2 years ago, just about to have my 2 year video call with the Glasgow team next week. As the Highlander has already said they are amazing, the ward staff will do everything they can to make your stay as comforable as possible. 

Will be thinking of you

Paper Palace 

Hi Paperpalace good to hear that you are 2 years out……. and doing well?

Doing very well at the minute thanks Mike, just back from a lovely lunch with a friend. When you are in the throes of transplant and recovery you can't imagine ever doing things like lunch out again, now I am never in! Always a bit anxious before appts, hoping my bloods are good and the team are happy with me but I think all of who tread this path feel like that.

Glad to hear you are living a full life too. I am definitely making the most of my second chance.

Great that you are getting in with life….. this is what SCT brings to us.

The Glasgow team do like to let people lose as soon as possible as long as everything is going ok.

My second Allo SCT was Oct 2015 and I was discharged in June 2018 from both Mrs P and my Heamatology Unit only having yearly bloods done at my GP surgery then a quick call with the Glasgow SCT Late Effect Specialist Nurse

Hi Fifimac,

I went into Queen Elizabeth Glasgow on 6th April had stem cell transplant on 13th was discharged on 6th May. It is pretty tough but doable. I have been home for 2 months and so far doing well no blood or platlets required since transplant. I am attending hospital in Edinburgh twice a week for blood checks and have twice weekly video calls with Glasgow. 

Good luck with everything all the staff are lovely if you have any questions give me a shout.

AMF

Hi Af55

Good to hear you are doing well post transolant. Edinburgh is also my local haematolgy hospital. I am there tomorrow for bloods prior to my video call with Glasgow next week. I have been promoted to 2 montby appts for which my veins are very thankful!

Look after yourself and remember it's a marathon not a sprint. :)

I'm in for blood checks at Western tomorrow also still have picc line but Glasgow want it taken out so it'll be back to the jabs!!

Best wishes fifi mac.