Hello
Just popped by to see whether anyone here has experience of MDS and stem cell transplant?
My husband is newly diagnosed, aged 45 and always fit and healthy. Just interested to hear the experienced of others!
Thank you!
Hi CB76 and welcome to this corner of the community. I don't have MDS but have had two Allogeneic (donour) Stem Cell Transplants for my rather rare, incurable and hard to treat Non Hodgkin's Lymphoma...... you can See my story here.
There actually have been a few folks with MDS come through the group over the years so let's look for them to pick up on your post.
You can also put MDS into the search tool near the top and see the older posts and as always you can hit reply and see if the folks are still using the site.
I do regularly talk with one person on our local Maggie's Centre online Haematology Support Group who is a few years post her SCT and is doing well.
You may also want to check out our dedicated MDS/MPN/ET/PV/myelofibrosis (MF) support group.
Always around to chat.
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