Hello all
For all you wonderful people who have followed my threads over almost 3 years and given invaluable advice, I just want to let you know my wife was re born yesturday with her Sisters cells. Now day +1 and doing well. Started today on ciclosporin to suppress her immune system. We are well aware of the long long road ahead but following her conditioning and transplant, she is feeling OK with nausea and diahorhea her only issues.
She was given an anti sickness injection day before transplant and had severe hives immediately, unbelievably after one Piriton tablet they completely disappeared within 1 hour, very odd.
Expecting her levels to drop rapidly in next 2 days so will be aware of things that may/are likely to occur.
We are currently staying in the hotel for Ambulatory care patients just round the corner from the macmillan Cancer Centre at UCLH. we are however expecting my wife to be transferred into the main Hospital unit within the next 2/3 days as infection risks increase. That's when I will have to leave her and head home. TBH I will feel much more comfortable in the knowledge she is in the main unit with help at hand immediately should she need it and,she feels the same.
So far, so good, praying all continues well.
Fulhamboy (Nick)
It shows how different teams are but yes they know each case best.
I was eventually sent home on day T+20 with my counts still below 1 so I was basically still nuetropenic but was given boxes of G-CFS to self inject every day and it took about 4 months for my counts to stay above 1…… and I was on Cyclosporin all the way through this.
Their logic was “you are safe at home then in the unit as there were a few bugs found their way into the unit”
Yes there will have been lots of changes over the years just as they moved away from Bone Marrow Collection with all the challenges this used to present to the much simpler Peripheral Blood Stem Cell Collection.
Incredible about the Consultant
Hi Nick, this sounds great and her BM is recovering quickly, nothing to fret about but something to celebrate, let’s look for her to keep infection free and escape.
Sounds great and very encouraging. I was having trouble eating during the last few weeks in the unit and Cyclosporin is best taken with food so I stayed on IV much longer than they wanted…… I just was being sick every time I tried to have the capsules….. they are rank 
