Hi all
You may remember me from previous posts re my wife's story with AML.
she has had 4 rounds of chemo including Flag ida, went into remission following in May 2019, sadly came back in Dec 2020. Been having daily chemo tablets at home Venetaclax along with 7 day injections every 2.5 weeks since January.
All gone OK with a few minor episodes of feeling unwell, but no need for hospitalisation so lucky there. She's had 4 courses of this treatment now and following her last biopsy is now showing no evidence of discease, however her last blood test showed neuts are only 0.1 and white cells incredibly low so no further going out and no visitors. Hopefully this last week they have recovered OK. Think the venetoclax worked too well!!!
Just today had a call from UCLH London to attend a consultation with the same team that we saw back in early 2019 this Friday 21st May. Its been a while due to covid and tbh the thought about this transplant had started to slip into the background......a little!!!
Now it seems the actual process is about to start, we're both very nervous and anxious naturally. My wife is very frightened as am I but we know this is something she has to have done. I guess there will be a lot of talking on Friday followed by many tests before the decition to go ahead will be made. My wife is almost 67 and her sister is a good match although she is 70 years of age. I guess they will do further tests on her to make sure her doner cells are still good. If not I guess they will find a doner elsewhere, the local consultant says my wife should not have difficulty find another match if required.
Really worrying times, I will keep you all posted on the progress.
Many of you were so so helpful when my wife's condition was first diagnosed and helped me through the bad times, for which I am truly grateful. It seems I will be needing that strength and support in the coming weeks/months and look forward to chatting once again.
Take care all.
Nick (Fulhamboy)
Hi again Nick Fulhamboy..... you have transported me back 7 years just about now when I was in the middle of all the tests and preparations for my first Allo SCT.
I have talked with a number who were in their mid 60s go through an Allo and come out the other side and living well.
I also know a few folks who’s donors were in their mid to late 60s and in fact my brother was 67 then 68 when he went through harvest for me.
You may find Macmillan’s latest version of understanding donor stem cell transplant (allogeneic) PDF here
You are embarking on a true rollercoaster so hold on tight, understand the process and try and not focus on the Allo SCT Challenges as there most like will be some.
My journey (see my profile) had lots of twists and turns but I am now over 5 1/2 years out from my second Allo and been in remission for over 4 years and doing great.
Sorry to hear this, a true rollercoaster.
Keeping everything 
