Hello,
I’m due to get an auto SCT at the Queen Elizabeth in Glasgow next week for my Hodgkin’s Lymphoma. I have been lucky to get into remission again using a trial of Nivolumab as a mono-therapy after relapse - it was great and has allowed me to stay pretty fit and well with relatively few side effects.
Does anyone have any experiences of the QEUH or the BEAM conditioning therapy - even the transplant overall? Just to put my mind at ease or make the experience more straightforward.
Cheers
L
My scar tissue continued to shrink between the end of my chemo April 2014 and a CT in January 2016 - 3 months after my second Allo SCT in Oct 2915.
Make sure you get the freeze head on Monday. Are they using the two pack oral rinse called Caphosol - Dr P said it cost a fortune but was very effective for me.
I set my alarm for every 3hrs for taking the Caphasol including a timer for the time I needed to rinse my mouth and never had any real problems- the staff are amazing.
