Post auto sct late effects

FormerMember
FormerMember
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Hi all. I'm new to the group so here goes .

A few weeks ago my creatinine and urea levels have become raised. I'm also anaemic. 

I just wondered if anyone else could share similar experiences. 

I had my auto sct June 2019.  I was already in remission when received therefore this treatment was considered the best option to keep the nodal marginal zone Low grade NHL at bay.

I look forward to hearing from you. Thank you. Slight smile

  • Hi again  and good to see you have found this corner.

    As I said no issues with my kidneys but I see you have mentioned being anaemic..... so a yes to that.

    Day 284 following my second Allo SCT resulting in 3 months of blood transfusions.

    But let’s see if anyone can help you on your main question.

    You may also find this thread Life after a SCT - A Survivor's Guide to be useful where we have collected some Post SCT information.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thank you Highlander! 

  • Hi ,

    have your team any explanation for this? I would hope so?

    So sorry you’re having problems though....

    Hugs xxx

    Moomy

  • hi,

    I had an auto sct in May 2019 for NHL.. the last 2 bloods in april and June show 134 and 138 creatinine. Have been advised to drink 2 litres water daily. only drining 1 litre at present.

  • Hi Josh,

    drinking lots of water can be hard, but try this; make it a rule that you have a long drink before you even get up, then that’s one big lot that you’ve got inside you, it’s a right faff to start with but you do get into the swing of it quite fast, and in this heat right now, water is your friend.

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Hi Josh.  My creatinine levels settled on their own. It took a few weeks. I too was told to drink more which is a good thing anyhow.

    Hope you're feeling ok otherwise.

    Kiam