CAR-T day 35

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Hi all

I’ve been out of hospital for a week now. Stayed in for the full 28 days, so didn’t have to go to my brothers home who lives near the hospital. Shame really as I was looking forward to bossing him around, getting him to adjust my pillows, make me sandwiches and cups of coffee. 

I got away with the treatment very lightly, because I had minimal side effects. Apart from C.DIF. Feels good to be home with my husband and cats. Nice to have a home cooked meal. The hospital food was ok but very monotonous. 

Have to go back every week for blood tests and to see the consultant. Got told off last time as I didn’t tell them I have a cold. But I didn’t have a temperature with it! 

Hope you are all wellBlush

Lyn x