To recap, I was doing fine at 2 years plus post-transplant. At my recent outpatients, they didn't like my blood counts, so I was called in for a bone marrow biopsy. The full results aren't back (they don't have the genetic profile yet, if that is the right term) but there are leukaemia cells there. The plan is that I go back in for 4-6 weeks and have some 'mild' chemo and some lymphocytes. They will see how I do on that, though they have to check first if I am fit enough, so ECG on Friday. Alternative is twice weekly visits to outpatients for maintenance treatment - I really don't fancy that at all. I felt consultant was cautiously optimistic that I wouldn't have to do the whole SCT cycle again.
Lots of packing to do.
Tessa
Oh Tessa, so sorry to hear your news.
An optimistic Consultant is good, rather than a doom and gloom one.
Let’s look for them to get the very best plan put together and move this in positive way. Yes, you don’t want to be on the Allo SCT journey a second time, yes it has worked for me so far (4 years post next month) but I would only recommend the second hit as a last resort.
((hugs)) xx
Oh no... as you say a rollercoaster and the same for how you must be feeling emotionally at the moment.. it’s the news we all fear when we have bloods done at the clinic appointments.
It’s a matter of dusting yourself down and going again with some treatment. I would be like you and go for the hit it hard approach over a few weeks.
‘You have done it before so this time you will do it again and boot the leukaemia out again!
Paul
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