Stem Cell Transplant

its been 6 months since i posted. I now have a lump on my right groin area. Went to my gp who said it is the lymph gland and measures 5 cm by 1.5 cm. I have an appointment next week with the hospital team to examine it. I will probably have a biopsy and maybe a ct scan. I am gutted as it has been only 2 years since my transplant. I am fearing the worst that the lymphoma has returned and I must go thru the whole chemo treatment and possoble transplant again. I guess I can only hope that that team decide I do not require treatment (at this time anyway).

Good luck Josh. I don’t have any insight into your condition but wanted to wish you well It’s the waiting and not knowing that is worst imo, try not to worry

Hi Josh2017 I certainly hope that this is not a relapse and something else.

I remember well being told my first Allo SCT had failed and I had relapsed all within 6 months.

But we got through the disappointment and my team worked with other cancer specialists across the UK to come up with a final assault on my NHL using a different conditioning and a second Allo SCT, although it was all very hard work with a years recovery I am now over 5 1/2 years on from my second Allo and doing great.

Keep us posted.

Thinking of you Josh

hugs xxx

thanks everyone for your well wishes

I have a further query. With my last biopsy, I assumed a small portion of the lymph node would be removed. However the surgeon removed the entire gland. After the procedure a seroma developed to fill the void left by the gland. Is it usual for an entire node to be removed in a biopsy?

Yes some folks do have an entire node removed

Mike, you are an amazing person to have gone thru your medical journey.

Every cancer journey is remarkable in my book - we do what we need to do to get through these challenges. The one very important lesson I learned over my many years is that there is always hope until there is none and so far the hope bus keeps on running going for me 

Hi Josh,

Sorry to hear you’re going through this, I know how stressful it all can be. I failed a few treatments before having my auto in 2018 but relapsed within a few weeks and honestly started to fear the worst. I then didn’t respond to Nivolumab but eventually gained remission from ESHAP and had my allo in June 2019 from a 9/10 unrelated donor. I celebrated my 2nd birthday a few days ago with a 7 mile run and although there’s been a few bumps, I honestly feel as good as I’ve felt for a good few years so things often do turn around.
I was told early during my treatment when things were going wrong that it was a matter of finding the right key to the lock and what works for one doesn’t necessarily work for the next so hang in there. 
With regards to the removal of a full node, I’ve had a few needle biopsies but once they took the full node out. I’ve still got scar tissue in there over 2 years down the line. 
Regards

Mark