SCT Success Stories

FormerMember
FormerMember
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Hi there,

I was diagnosed with classical HL in October 2016.  Had 2 cycles of ABVD and got a clear scan.  Had 4 further cycles of AVD - clear scan.  Less than a year later, 7cm 'mass' in my chest.  Lit up like a Christmas tree, as did a lymph node in my neck.  Had a large biopsy (around 3cm) of the mass in my chest and it came back negative for lymphoma (thank God right?!) but left us in limbo.  Further scan, lymph node in neck still lit up so this week i'll have that biopsied followed by another PET scan next week.  My dr says if I have relapsed, it with be GDP chemo for me plus SCT.

I guess I'm after success stories?  There might already be a success story link if someone can point me in that direction?  Has anyone had GDP?  What was it like?  I head your hair may not fall out.... is this true?  Is there anyone out there a few years down the line and living the life of their dreams.  

I've been handling this really well and taken advantage of this 'limbo' stage that we've been in for the last three months.... but now it is coming to an end with this new biopsy and scan... I'm getting really scared and starting to lose hope.

Any advice would be most welcome.

Thanks,

Shelley

  • And another proud Mum moment, the Gas Safety advert is now out, her 16 words of voiceover from her home studio! 
    it was on TV just now!

    Hugs xxx

    Moomy

  • Enjoy Thumbsup

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hope people have had their confirmations (if needed) that they continue to need to ‘shield’ as registered as very or extremely vulnerable? 
    daughter had a phone call which also told her she was still on a supermarket priority list.

    stay safe, all

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to markyflem

    Thank you Mark, hearing your story has been very inspiring. I will take the advice of sucking on ice when my time comes round for SCT and also how to occupy oneself once an inpatient for the period of time.

    Take care x

  • Hi  good to see you have found the group.

    As I said in your New to Community post do put up your own post as it’s the best place where you can collect your support Wink

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thanks Mike

  • Bumping this thread for those who are on the SCT pathway.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge