Ideas for your checklist

Also thinking of you, Elena,  and hope all is going as smoothly as it possibly can.

Custard x

Just popping by to say thinking of you and hope things are slowly starting to improve though it may not feel like it.

John x

Hey Elena.....been thinking of you loads...hoping all is going ok....take care lovely, Dxx

Merry Christmas Elena, thinking about you and hope you are as well as can be expected and that they are looking after you especially today.

Been thinking of you Elena, hoping they are trying to make today special for you 

Christmas Hugs xxx

Hello everyone

this is about all I can muster so pleasee bare with me. 

I am 14 days post Allol and still in mucosititis hell. Any tips..

BIGGER THAN THAT is I appear to have been overloaded with fluids (i haven't been able to lie flat since day 1 of chemo. A very bad cough will wake me and it feel like extras fluids..

scans proved that so I have carefully been having a diuretic ad hoc but my weight just keeps going up! 

Also I am. Severely lacking in potassium so they carefully have to ensure I get that but without overloading the fluids

help? Xxx 

Hi Elena,

Sorry about the issues, but so very glad to hear from you. That's no help, I know! Got everything crossed that things begin to sort out very soon and that you can be made comfortable in the interim.

Custard x

Hi Elena,

Great to hear from you. Hope things pick up very soon. Not had the fluid problem sorry, but I did have low potassium for a long time over the summer - I remember they gave me pills as well as IV -maybe pills will stop there being an overload of fluids? Keep hanging in there!

Greg

Hi Elena, 

Lovely to see you post, it's been a long slog for you already I know, lovey. 

A lot of this will sort itself out once you begin to eat and drink normally. Are you able to cope with build up drinks if they are perhaps icy cold? As they have the levels of protein in them which help you heal a touch, also are balanced nutritionally which would make sure you get potassium but with other nutrients to ensure you don't get overloaded. Low potassium levels seem quite a norm with transplants, not sure why! 

Diuretics do help a little, plus can they give you regular pain relief, maybe even a numbing mouth spray just before you try anything orally? 

Sending hugs xxx

Ah Elena...so very good to hear from you xx No pearls of wisdom I'm afraid but just wanted to let you know I'm thinking of you....sending big hugs, Dxx