What you wish you had known before starting Radiotherapy?

  • 22 replies
  • 21 subscribers
  • 1164 views

Hi all

As part of a new series of blogs sharing hints and tips from members, we are asking 

"What do you wish you had known before starting Radiotherapy?"

This could include practical tips, or just advice that might help with anxiety when approaching your treatment.

We have shared some of your suggestions in this Community News Blog but would still like to hear more in this thread. Everyone is welcome to contribute and we really appreciate your help.

  • Tony, I was so desperate yesterday, I knocked on somebody's front door and asked if I could use their toilet.  Luckily he let me!

    Steve (SteveCam)

  • I only had 5 treatments of Radiotherapy after my breast cancer surgery but I had a painful shoulder after the 2nd lot of surgery (the explanation was that I must have been laid 'awkwardly' on the operating table whilst unconscious - how would I know!) anyway, due to this the position of holding the posts over my head to have the radiotherapy was extremely painful but it was a case of 'needs must' and I managed to complete it all and the physiotherapy I received really helped. BUT what no one told me was that you can get cramp like pains in the muscles around the breast sometime afterwards - I honestly thought it was angina or something the pain was so sharp I couldn't breathe and it can be triggered by things like putting a coat on or just taking a deep breath. I was so relieved when I learned that many other breast cancer survivors have the same experience but I do wish someone had warned me it might happen beforehand then I would not have been so worried. I am coming up for 2 years post surgery and I still get the cramps but they seem to be lessening. Just wanted to let people know as I haven't seen any literature about this potential after effect, not everyone will get it but I know quite a few who have so its not just me, so just wanted to raise awareness.