Cyberknife radiotherapy

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My husband is having a course of this type...does anyone have experience of it to share?

  • Hi 

    I'm sorry that no one has any experience with this type of radiotherapy to share with you. I did look for previous posts in the group but they were several years old so the people who posted may no longer use this community.

    Edit - I have removed the link from here as I now understand that it was to the wrong type of radiotherapy treatment - sorry!!

    You could ask about it in ask about radiotherapy and radiographer Kate will respond within 2 working days.

    When you have a minute it would be really useful if could pop something about your dad's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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  • Hi Hils13, I had cyberknife for a secondary brain tumour in 2013. Primary is kidney cancer. I had 3x 20 mins sessions on 3 consecutive days. 

    It's not the same as what Latchbrook linked to .

    The sessions are computerised,based  on programming done by a specialist radiographer/ consultant oncologist.You lie on something similar to a CT scanner n a robotic arm zaps you with very accurate radiotherapy beams, changing direction as it goes. I've not had conventional radiotheraphy so can't really compare tbh.

    Do ask me if you've any more questions and I'll try my best to answer them.

    Here is a link to where I had my treatment. It includes a video

    https://www.enherts-tr.nhs.uk/patients-visitors/our-services/cyberknife/

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Thanks for correcting me  and I'm sorry  for linking you to the wrong information! I have now removed the link.

    I couldn't find any information on cyberknife on Macmillan's site buttercup01. Have you found any?

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  • Coincidentally I answered a query from another member  earlier today re cyberknife.

    I don't know if there's any info on the Macmillan website Will look. The treatment has been around in the UK about 10 to 15 years by now. I was v lucky as Mount Vernon in Middx was one of the few places to have it, UCLH being another.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • I tried searching cyberknife earlier but nothing came up. Could it be known under a different name?

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  • Yes Latchbrook, it is under a different name. See link below -

    https://www.macmillan.org.uk/information-and-support/treating/radiotherapy/external-beam-radiotherapy-explained/stereotactic-radiotherapy-srt.html

    But this is specific to treating brain tumours, which is what I had as a met 

    X

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hi buttercup..thankyou for your reply and sorry its been a delay in getting back to you..he had 5 sessions which finished on oct 3rd...awful fatigue since and a few issues with his bowels but hoping this eases off in time...due for a scan in early jan to see if its worked... how did you find the side effects and did it help with your tumour?

    Hoping you are as well as you can be

    Xx

  • FormerMember
    FormerMember in reply to buttercup01

    Hi everyone forgive my ignorance but my understanding of Cyberknife is the method of the surgery, nothing to do with radiology ! I had 40 sessions of radiotherapy on my neck and tongue and I was held in position by the mask that's moulded specifically for the patient, it's bolted to the table so you can't move. Only towards the end of my treatment my neck got very red, hot, and very uncomfortable. My neck and shoulder is discoloured 8 year's after surgery. Got an all clear check up last week ! So stay positive.

    Had a prosectomy last year and still suffering side effects. My first cancer was easier to recover from. But I am clear with this one aswell. So recent sufferers stay positive the odds of beating Cancer are very good.

    Best wishes to all .

    Patrick

  • Hi patrick cyberknife radiotherapy is also known as stereotactic radiotherapy..definitely not surgery ...its  more targeted given in less sessions between 3 to 8 normally..for smaller tumours where there is no spread but can be used in other cases if the radiologist consultant offers it...hope all is good with you still ...

    Hils