Looking for RMS patients / parents / survivors

FormerMember
FormerMember
  • 2 replies
  • 2 subscribers
  • 2354 views

Hi, I'm new in this group.

My daughter is an RMS survivor.

Are there any Rhabdomyosarcoma parents/survivors/patients in this group?

Thank you!

  • Hi and welcome to the online community

    That's great news that your daughter is a RMS survivor.

    I typed 'rhabdomyosarcoma' into the search bar in this group but could only see three very old posts which mention it I'm afraid. However, I did have more luck when I widened my search and noticed that most people who mention it are in the soft tissue sarcoma group, including mat224 who has only just joined and is looking for someone to talk to about it.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'. I'll include a link to mat224's post here if you want to reply to them.

    When you have a minute it would be really useful if could pop something about your daughter's journey into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember

    Hi.. Yes! Im new here...my daughter is an RMS survivor