Just wanted to say hello. Our son was diagnosed with Ewings Sarcoma, a rare primary bone cancer, 3 years ago. He had a year of treatment and has clear scans so far. He is 27 now. He’s really struggling with fatigue and recurrent colds and other viruses. Chemo for bone cancer is pretty grim and he had numerous blood transfusions to get him ready for the next round and he spent almost a year in hospital. But he’s here and has started work. I struggle massively with scan anxiety, which we are approaching, probably in January. Not quite sure as he has moved over to adult care.
Hi Dicey and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
That's great to read that your son has had clear scans but I can understand the anxiety that builds before the results of each scan.
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
You might also find it helpful to join and post in the bone cancer group as you'll then connect directly with others who either have this type of cancer or are connected to someone who does.
If you'd like to join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your son's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
