I don’t know what to tell my family. I don’t have a definitive diagnosis, but I don’t think it gets much more definite than what I know and have been told so far.
Two days ago I had a TV snd Abdominal scan whereby a vascularised cystic mass measuring 87mm x 43mm with solid compartments was found, along with unusual pelvic free fluid. The IOTA is 92%. The gp rang me 24 hours after the scan to say I needed to come in first thing tomorrow (today) to have urgent CA125 and liver marker blood tests and that I will be referred under the fast cancer pathway. Also that they’ll want to operate to remove the mass. I’ve been told to keep my phone on and answer any calls.
I’m a bit shell shocked to say the least. I went to the gp with a joint problem and she couldn’t get to the bottom of that snd saw that I’d had a scan earlier this year whereby I’d had a small adnexal cyst checked to see that it was shrinking, and it was, so I was discharged from care. I thought this weeks scan was a bit of a waste of time initially but it might turn out that my gp has saved my life! I have no obvious symptoms, bar looser bowel movements and dizzy spells which I’d not really thought too much about.
So, there’ll be lots of appointments and what-not before I can say for sure what I’ve got. It all feels surreal.
Any advice would be appreciated.
Hi GeorgieH and a very warm welcome to the Macmillan Community but I am so sorry to hear about your on going diagnosis.
Having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and recently Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)…………so you can have a look through this link Cancer Specific Groups where you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Thank you very much. I’ll take a look. 
Thank you. Just even thinking of what’s about to happen is overwhelming, and I’m already forgetting things, so the extra ears is good advice.
