I've read a handful of posts and threads.
The search tool didn't flag up angiosarcoma.
The posts I've read were from people who have cancer (I don't at present).
The comments I've read on the various posts make me feel like an imposter for even posting this.
I don't need any warm wishes. Many of you are on the front lines of this.
I just want some facts and information.
My mother in law just got diagnosed yesterday with angiosarcoma. She previously had breast cancer around 2 yrs ago and underwent radiotherapy. Now it seems she has an aggressive angiosarcoma and is facing a radical mastectomy in the week ahead.
I love her. I don't know how I'm supposed to process this. But I need to. And I need to be informed so I can be the rational party in all this for my wife and the rest of our family.
Additionally... last month my cousin was diagnosed with a glaioblastoma in her occipital lobe. She's had surgery and her prognosis isn't fantastic. In fact it's terrible.
I'm not first hand in either of these situations. So I just want to express my frustrations, and send my hope to all of you who are not me on this forum.
I almost said something other than frustrations. But that's it. I have no condolences or pity for any of you. I have frustration and injustice. I'll carry the hope for all of us too. I cling to that always.
I'll be the angry, hopeful guy in the corner.
I don't know where to begin.
I send you all my justifiable anger, and my unwavering hope.
Facts will help me to process this all and to help my loved ones process it. While I try to be angry on everyone's behalf, and also mostly just cling to hope..that sounds so hollow. But before I deleted the uncountable nunber of times I said a really bad curse word it resonated with more sincerity.
I send my love to you all.
Hi and a warm welcome to the Macmillan Community but I am sorry to hear about the reason you are here.
I know from experience having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' treatment journey, be it as a patient or caregiver can help a lot.
As you have seen the Community is actually divided into dedicated Cancer Specific Groups……. like our Soft tissue sarcomas group
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
There as many people join the community looking for information than there are people who post in our groups so there may be someone out there who will pick up on your post.
As for the practical and emotional challenges of supporting your mother in law and indeed yourself you may benefit from joining and posting in our general cancer……
……. support group where you will connect with a wide range of members navigating the exact same support challenges.
I did a search of the community for angiosarcoma and the link below will bring up that search….
https://community.macmillan.org.uk/search?q=angiosarcoma#smpq=angiosarcoma&serpq=angiosarcoma
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.?
Do get back to me if you need further help navigating the community.
