Hello lovely people, new to the group, breast cancer warrior

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New to the group, feeling very unheard and frustrated atm, can anyone relate??

  • Hi  and a very warm welcome to the Macmillan Community but so sorry to hear about your diagnosis. 

    I know from experience having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..

        Breast cancer

    …….. support group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • I have just read your bio  

    If I am understanding correctly you went through treatment last year and are now in the complicated place of living with what has happened and what might happen. I think you have to have been through cancer treatment to understand this. I have metastatic tnbc and somewhat to my surprise reached remission. In some ways the time just after the remission was confirmed was the hardest bit. A slow loop of all the horrors I had been through playing in the back of my mind like the worst sort of nightmare you can’t wake up from. The continual worrying whether every new ache is ‘it’ coming back. I remain on regular scan surveillance and have the anxiety whilst waiting for results each time. Meanwhile your body and mind are still recovering but everyone thinks you should be better now. So yes, I relate! 

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    I have metastatic Triple Negative Breast Cancer, in remission