I'm a 74 year old male, who was diagnosed with advanced prostate cancer in May 2025, with a high PSA level of over 300.
I had an MRI and my urologist informed me the cancer had spread to bone and lymph nodes. He started me on a double Firmagon injection into the stomach on 30 May 2025 and one injection a month afterwards.
In September 2025, my PSA level had reduced to 21. The Firmagon injection was discontinued and I was started on docetaxel chemotherapy (a 1 hour infusion administered every 3 weeks over 18 weeks - 6 sessions in total).
In November 2025, I commenced to receive an Xgeva injection, one every 3 months for bone strengthening. I was also prescribed Relugolix 120mg tablet, taken once a day, to lower testosterone.
In December 2025, I was prescribed further hormone treatment with Darolutamide (4 x 300mg tablets/day
On 07 January 2026, I finished chemo and my PSA level was at 2.07. I continued on the tablets.
I had a CT bone scan done in February 2026 and was told by my oncology team they were happy with my progress but they ordered a PSMA-PET scan.
Unfirtunately, the reults of the PSMA-PET scan, done at the end of April 2026, revealed that the some cancer was still active. Retesting the biopsy and BRCA testing will now be done to determine future treatment.
Needless to say I'm disappointed. As my situation is current, if there are others in a similar position I would very much appreciate to hear to hear from them, and hopefully exchange information and give support.
Thank you.
A biobiopsy confirmed
Hello Tommyd
A warm welcome to the Macmillan Online Community, although I am so sorry to find you joining us. I am Brian one of the Community Champions here at Macmillan and indeed am in the 4th year of my personal Prostate Cancer journey.
The Community is divided up into cancer specific groups and I would advise you to join us on the Prostate group where you will "meet" others on the same or similar journey. here's the link you need:
Once you click on the link and the page opens up, click on "join" on the black banner at the bottom of the page. Once you have joined the group you can then introduce yourself in the "New Here - Say Hello" section. You can either copy and paste your post above or post a new one.
I look forward to meeting you again in "our" part of the Community - I can assure you of plenty of help and advice.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Tommy (Tommyd )
Yes, you have thank you, I have seen it and will leave it today to see who answers it. I was going to reply myself however I am off out this afternoon but will check up on it later.
If you do need any further help in navigating the Community, please do get back to me.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Gillysm
A warm welcome to the Online Community, although I am so sorry to find you joining us. If you click on this link it will enable you to join the group and start your own threads:
Without a full diagnosis you don't know how the cancer has progressed, however I can tell you we have Community members here with Stage 4 Advanced Prostate Cancer diagnosed over 10 years ago - a prognosis is a guess!!
Do you have a Maggie's at your local hospital? This is a great place to pop in for a brew and some support.
As it's the weekend I would ask you to call our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) - have a chat with them - they can help with your felelings.
Please do stick with us - ask any questions, however trivial - you will find plenty of help and support here.
Best wishes- Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
