Hi i have just joined the group. My husband has Multiple Myeloma for over 10yrs. He has recently been on fourth line treatment but this has been stopped due to infections. He is feeling a bit vulnerable as he is not used to not being on his treatment. Hoping things will improve as he has had a rough ride over the winter.
Hi Sophiecat and a warm welcome to the Macmillan Community but I am so sorry to hear about your husband….. Having been on my own blood cancer journey (Lymphoma) for coming up to 26 years I do appreciate the challenges.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our general cancer……
Carers only (that I do see you have already joined)
……. support group where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Links” I have created above …… then once the group page opens you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
