Diagnosed with secondary breast cancer

Hello Cathmeg,

A warm welcome to the macmillan community, although I'm very sorry you have the need to join.

The community comprises numerous groups for individual cancer types and I'd like to suggest you join the secondary breast cancer forum and repost your questions there. I'm sure there will be members there to answer your questions.

I've included a link below to access this.

With my best wishes,

Derek.

Secondary breast cancer forum

Hi Cathmeg 

I am sorry you have been diagnosed with secondary breast cancer. I can see you have been signposted to the secondary cancer forum. It’s often quiet on there so you might also want to join the main breast cancer forum, which is a lot busier and has many users with a secondary diagnosis. Here’s a link Breast cancer forum 

I also have secondary breast cancer although of a different type (TNBC) and different metastasis site (liver) so I have had a different treatment pathway. I had very similar concerns to you when I was first diagnosed in 2022. What I have learned is that there are lots of treatments for secondary breast cancer, particularly oestrogen driven cancers like yours. Many people live for substantial amounts of time in reasonable health. It does take some time to adjust. It obviously makes sense to make sure you have a will, to put power of attorney in place and to ensure loved ones understand your wishes, but beyond that to try to live as normally as possible. For many people it’s a chronic condition to live with rather than an immediate threat to life.