Long distance caring for a partner with Myeloma

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Hi...this is my first interaction.with the group and I'm a bit nervous. I live in Ireland abd my partner f 30 years in the uk. He has recently been diagnosed with Myeloma at the age of 79. Up til recently he was fit and we'll.. running 5k a day but has just started treatment and has had awful side effects...2 a and e admissions and now weekly hospital visits. I've been with him  in the ukfor 3.5 weeks but was starting to get so exhausted that I knew I was.heading for a bit of a crash myself so have come back to Dublin for a bit of a break...but feel guilty that he is alone but was at breaking point. Anyone in similar circumstances?

  • Hi  and a warm welcome to the Community although I am sorry to hear about your partners Myeloma diagnosis.

    I am Mike and I help out around our various Blood Cancer groups.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….

       Myeloma

    ……. support group.

    This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your partner and indeed yourself you may benefit from joining and posting in our……

    Family and Friends

    Carers only (if you are his caregiver)

    ……. support groups where you will connect with a wide range of members navigating the exact same support challenges.

    To connect with a group click on the “Bold Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you so much mark...will check out joining the dedicated myeloma group for support. Much appreciated.Ria