Hello . I was diagnosed with Lymphoma in February of this year with the main tumours in the knee and groin. I have finished six cycles of chemotherapy/ immunotherapy and the tumours and gone . I am due to have radiotherapy and then “maintenance for two years The whole time I have been self administering Inhixa injections. I can understand there was a risk of DVT and there is a protocol saying Inhixa should be given during treatment . I know the injections are the least of it but I am getting a bit fed up with them . Do I wonder if they might stop now after chemo or after radiotherapy or would it be after two years maintenance?
Hi CorixP973373 and warm welcome to the Macmillan Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis. I am Mike and I help out around our Lymphoma groups.
I have no experience of doing Inhixa injections but the main people to ask would by to your clinical team.m as they know your case better than anyone.
I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ my be different I most definitely appreciate the challenges of this journey rather well.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.
Hi Corinna CorixP973373 …… this New to Community area is like our community reception desk where new members look how to navigate their way around the wider Community.
So most people move on from here to their cancer specific groups……
So you may want to join and post in our dedicated Diffuse Large B-Cell Lymphoma group to see if anyone has any experience……. but based on my 25 years journey the best people to get answers from are your clinical team.
