My Prostate Cancer so far…

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Hello, in early 2020 I had a PSA which came back at 27. My urologist wanted to check it to be sure and the next one came back at 37 so we obviously had a problem. I had a biopsy which showed Gleason 9 (I forget the breakdown but about 1/2 the cores were 4+5 I recall) Bone scan and CT showed no spread so I  had radiation and 18 months of Lupron. About a year after stopping Lupron my PSA suddenly shot up to 8 and urology sent me to oncology who ordered a PSMA PET scan which showed a clear prostate but spots in my pelvis, L5, head of my femur and “possible” involvement of 1 lymph node. Was put back on Lupron and Xtandi which made my PSA plummet to a very low 0.014. After maybe a year, oncology, in an effort to alleviate some side effects (mostly hot flashes) reduced my Xtandi by 1 pill from 160mg daily to 120mg. My next PSA rose to 0.028 and the next to 0.11. They’ve told me to go back to 160mg a day but I’m wondering if anyone else has had a similar situation? I haven’t had an PSA since increasing the dosage (scheduled for about a month from now) but I’m freaking out! Was much happier with the really low PSA. Anyone else have hormone therapy effective for only a year or could the one pill have made a difference? I’d appreciate any insights members might have.

  • Good Morning  

    A warm welcome to the Macmillan Online Community although I am so sorry to find you here. I am Brian one of the Community Champions here. I am also in the 4th year of my personal Prostate Cancer journey.

    I see you have already joined the prostate group. Why don't you introduce yourself there in the "New Here - Say Hello Section" - you can just copy and paste the above post or repost it here. We are a friendly bunch and you are assured of a warm welcome.

    I look forward to "meeting" you again in "our" corner of the Community.

    Best wishes - Brian.

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  • Thanks Brian for steering me in the right direction!