I’m new to the group but would like to speak to someone who has what I have which is myeloma and al amyloidosis. I was diagnosed a year ago and am having chemo treatment. This is my second type of treatment because the first type gave me small bowel obstruction and they had to stop it and change the drug they were using. I would like to talk about the symptoms and to see if anyone has the same feeling with their chemo has me. I very rarely feel well. Hope someone can help.
Sanza
Hi Sanza and a very warm welcome to the Macmillan Community but sorry to hear about your myeloma and al amyloidosis diagnosis.
I am Mike and I help out across our various Blood Cancer and there have been a few folks post on the community with myeloma and al amyloidosis.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Myeloma Support Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
