Hi everyone I'm new

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  1. I finished my chemotherapy just over 3 months ago, the treatment I was having was the R Chop, but recently I have been having really bad issues but only at night time, I'm having pain in my joints, hands and legs, I cannot understand why, I do also have other health conditions like fibromyalgia, herniated disc, and a few more, but I was not having these issues before like I'm having now, has anyone had the same or something similar? It's making me so paranoid thinking my cancer is back and maybe spreading to different places, I'm also having a pet scan on Tuesday just to check to see how things are going, as there was 2 lumps on my last scan and they did not know what it was and this is why I'm also panicking Grimacing
  • HI Reb,

    so sorry to hear what your going through Reb , I'm new to all this  , got my 3rd chemo on 14th, have you got another  appointment with the Hospital soon? and im sure they give you something to mange the pain for your joints. the waiting and not knowing is the worst thing, try to keep busy and try to be positive , stay strong .

    Simon 

  • Hi  and warm welcome to the Macmillan Community although sorry that you had to find us.

    I am Mike and I help out around our Lymphoma groups……. As you have had R-CHOP I am assuming that you have been treated fir one of the 60 types and sub-types of Lymphoma

    Having pain in your joints, hands and legs post treatment is rather normal…  R-CHOP is strong stuff so your body does take a hit and it will take time to recover…. and this can be a lot longer than you would think…… and certainly had to navigate this.

    I have been on my lymphoma journey for over 25 years with 2 rare types of T-Cell NHL and can certainly recognise these challenges…… but I am over 9 years out from my last treatment, turned 69 last Nov and am living a great life.

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms)….. but we can’t have a group for all 60 Lymphoma types but these are our main Lymphoma groups below.

      General Non Hodgkin's Lymphoma

      Follicular Lymphoma

      Diffuse Large B-Cell Lymphoma

      Mantel Cell Lymphoma

      T-cell lymphomas

      CLL, SLL and HCL

    These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    Have a look at the group list above…… then click on the link that best fits your type of Lymphoma……. and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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