Hello new here.
mum not been feeling herself since September we had just returned from holiday we was all abit under the weather we all got better mum just seemed to get worse bit by bit, back and forth to the GP told viral, then sinusitus then couldn’t get an appointment ect so mum battled on at home.
Abit of mums history, she had breast cancer 7 years ago, had a lumpectomy and radiotherapy and was given the all clear in the end. She had her mammogram in June which came back clear and was on the path to recommence 3 yearly mammograms moving forward.
long story short mum is only 55 , mum complaining of breathlessness for a few weeks returned home from holiday two Saturdays ago i took one look at her and told her she needed to go to A&E mums was really scared didn’t want to go, managed to get appointment with out of hours the following day, they listened to her chest and said it was clearer sent her into A&E with suspected blood clot.
scanned mum and full white mass over right breast and collapsed lung, mum had a litre of plueral fluid drained from long and it was sent for testing. The next week was a drag waiting for results but none the less mum was called back in on Friday, told breast cancer in right breast two significant masses and it has metastases into the plueral fluid which is the layers in the lung and into her stomach. They have told her they can’t do any operations and only provide treatment to ‘control’ the cancer.
mum is in a total state we are all trying to sugar coat it for her but she knows, she knows this will take her life, I am a nurse which makes it worse as I know and fear what is to come.
We are still waiting to hear from oncology to see what treatments they can offer.
my question is anyone in similar circumstances what has been offered to you?
why haven’t they attempted to take biopsies from the breast is this because it’s spread and it is deemed pointless? I’m waiting for a call back from the specialist nurses but no response yet. Can’t even get mum into GP for days had to beg for an appointment this coming Wednesday to give her something to calm her down, feeling totally defeated.
I just really need to speak to someone where they can relate to my situation
xxx
Hi Sparkes92 and a very warm welcome to the Macmillan Community but sorry to hear about your mum's diagnosis.
A cancer journey like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated……
……. support groups.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your mum and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
